https://alexisconstantinou.muchloved.com/

I am virtually swimming to France in memory of baby Alexis, who was born with Spinal Muscular Atrophy a genetic killer of infants and toddlers.

Alexis was the cutest little boy you have ever seen with the perfect smile. At a few months old his mum noticed he wasn't moving his arms so well and went to the doctors thinking he may need some physio. After being referred to the local hospital and blood tests the family were told little Alexis had Spinal Muscular Atrophy type 1.

 Unfortunately this is a terminal condition with a short life span, there is no cure at present. Only 10 days later he was admitted to hospital with a chest infection, Alexis became weaker, his little muscles too weak to eat or cough properly. Mum & Dad had to learn how to suction him and feed him by an NG tube. Periods of hospital admissions and being at home followed. His condition continued to worsen and he spent time at Acorns Hospice, the hospice accommodated mum, dad and the girls and tried to make life as normal as it could be.

Sadly Alexis passed away on November 2nd 2015 aged just 7 months old.

The swim will take place over the month of July/ August in Ladywood swimming centre